tag:blogger.com,1999:blog-2536178837256094246.post341630143696023584..comments2023-10-12T02:48:59.370-07:00Comments on The Nefariouspoo of Sarah (A Field Trip into Disability Advocacy): A Short Talk and One Decision LaterSarahhttp://www.blogger.com/profile/02841767505240383644noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2536178837256094246.post-92155805533131439732006-11-01T14:53:00.000-08:002006-11-01T14:53:00.000-08:00Sarah,
Your blog has peeked my interest, 1. your ...Sarah,<br /><br />Your blog has peeked my interest, 1. your daughter's probable diagnosis, and <br />2. your interest in islet transplant.<br /><br />Truly look deep at all the research of the islet transplant and the side effects of the immunosuppressing drugs. Ask many questions and many many more.<br /><br />I know several people who have had the transplant and all have said that they would not do it again, they would find another way. At the time, the CGMS was not out yet - it is now and I believe it would be cheaper than the cost of the drugs you would be on for the transplant. They are not "there" yet. Wait for something better to come - and it will!<br /><br />You are young, you have two young children to look after.<br /><br />The drugs they give you do horrible things to your body. And the papers the doctors publish - don't think they include everything because they don't.<br /><br />Take care,<br />CyndiAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-31336364400499548132006-10-09T13:10:00.000-07:002006-10-09T13:10:00.000-07:00Very interesting!
I'm anxious for things to devel...Very interesting!<br /><br />I'm anxious for things to develop for you - I'm sure it will be an interesting journey to experience, either way it goes, and I am hoping that you'll share as much as you can with us.Scott K. Johnsonhttps://www.blogger.com/profile/06601851114190791084noreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-86199623159793111272006-10-09T12:18:00.000-07:002006-10-09T12:18:00.000-07:00Bernard,
Thank you for the kind words! My main p...Bernard, <br />Thank you for the kind words! My main problem at this point is the lows. I’ve always had lows, but as I’ve gotten older I can’t tell I’m low for the most part until I’m well into my low thirties. I feel blessed and lucky that I haven’t had any incidences leading to ER visits or hospital stays, but I also check my blood sugars around 19-20 times a day and I will let myself run higher if I am particularly concerned. I think a big part of it for me is being at home alone with the kids. I worry that if something happens to me, what will they do? Can they take care of themselves, and hopefully get someone over to help me in time if something does happen? I have no guarantees I will qualify for this transplant after we have all of the paperwork finalized and laboratory tests done. I do want to try, though. I guess I’ll see what happens, and if it doesn’t happen, perhaps it isn’t in God’s plans for me!Sarahhttps://www.blogger.com/profile/02841767505240383644noreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-61631243619153249352006-10-09T12:04:00.000-07:002006-10-09T12:04:00.000-07:00Sarah
I'm sorry that you're having such an awful ...Sarah<br /><br />I'm sorry that you're having such an <i>awful</i> time with your numbers, that really stinks.<br /><br />I also hope and pray that your islet transplant works. From the little I've read, these tend to work for more than a few years. I hope you're blessed with a long life for those transplanted islets.<br /><br />I'll be keeping an eye out for updates on your progress.Bernardhttps://www.blogger.com/profile/14936264471078732019noreply@blogger.com