tag:blogger.com,1999:blog-2536178837256094246.post2112184029939505148..comments2023-10-12T02:48:59.370-07:00Comments on The Nefariouspoo of Sarah (A Field Trip into Disability Advocacy): I've Got a Lot to Think About TodaySarahhttp://www.blogger.com/profile/02841767505240383644noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-2536178837256094246.post-13095329501470017622006-10-24T09:24:00.000-07:002006-10-24T09:24:00.000-07:00Hi Sarah,
I agree with what others have said here....Hi Sarah,<br />I agree with what others have said here. I hope that the diagnosis will eventually help you to help Sandis enrich his life even more.<br /><br />There is an excellent PDD clinic at the University of California, San Francisco; I work with kids from there from time to time, most of whom are farther along the spectrum when it comes to PDD (they mostly are autistic or have asperger's syndrome). I am always amazed by these kids and how well they do.<br /><br />Fortunately for Sandis, you understand that a chronic condition does not define who you are but can, despite the difficulties, make you a better and wiser person.Anne Findlayhttps://www.blogger.com/profile/03005305831235654057noreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-10696699214908286042006-10-22T14:44:00.000-07:002006-10-22T14:44:00.000-07:00Sarah -
Thanks so much for making yourself known ...Sarah -<br /><br />Thanks so much for making yourself known on my blog. As I am sure you will discover and research endlessly (if you are anything like me!!), PDD-NOS is the category of "Pervasive Developmental Delay - Not Otherwise Specified" and it falls under Autistic Spectrumn Disorders. Basically, this means that Sandis is showing certain signs of autism while he is not showing other signs. It is the mildest form on the autistic spectrum.<br /><br />It is a LOT to handle when you first discover something like this about your child. Allow yourself to be stunned, shocked, sad, devastated. It is okay. I discovered that Conor was autistic almost a year ago and I still go through those devastating days sometimes. BUT, all is not lost. After you process it for a while, you will be able to remember that NOTHING about Sandis has changed. He is still the same beautiful little boy that he was before you found out that his "quirks" have a name. Don't let the word "autism" scare you. <br /><br />If there is anything that I can do to help you through this initial stage of discovery, please feel free to contact me: mhose@cfl.rr.com<br /><br />Never forget: <b>God doesn't make mistakes.</b> Our boys are masterpieces, beautifully made in His image.<br /><br />In His love,<br />MelissaGClef1970https://www.blogger.com/profile/02027258605839422577noreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-66296214551981849792006-10-20T05:47:00.000-07:002006-10-20T05:47:00.000-07:00Sarah, you are an intelligent womahn and devoted m...Sarah, you are an intelligent womahn and devoted mother. You will be able to work toward the best possible outcome for Sandis (although I know the traveling back and forth is a pain.)Minnesota Nicehttps://www.blogger.com/profile/02170043587010711783noreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-51337097194723761402006-10-20T03:51:00.000-07:002006-10-20T03:51:00.000-07:00I'm sorry to hear about your son's diagnosis. LIke...I'm sorry to hear about your son's diagnosis. LIke Scott, I was thinking that it was like learning about a diabetes diagnosis. It's a lot to handle in the beginning, but in time, the management will likely become second nature. Good luck with figuring it all out.Lyrehcahttps://www.blogger.com/profile/14731508321420598343noreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-72908747521752147542006-10-19T20:43:00.000-07:002006-10-19T20:43:00.000-07:00Hey Sarah,
My goodness, yes, you do have a lot t...Hey Sarah, <br /><br />My goodness, yes, you do have a lot to think about.<br /><br />But - you learned how to deal with diabetes, and all that it entails. If you can do that, you can tackle anything. <br /><br />It is overwhelming, and because it's all about your child, you are feeling like you need to fix it, and fix it as soon as possible. <br /><br />Slow down, take some deep calming breaths, as God for help and guidance and clarity in the process . <br /><br />You can do it. You are a miracle worker. <br /><br />Please let me know if there is anything I (we) can do for you. I would also LOVE the opportunity to meet you guys somewhere for a happy meal or something if you are in town for an appointment and have some time to kill. Just let me know.<br /><br />I also <i>completely</i> understand if you're weirded out by meeting people you only "virtually" know.<br /><br />Either way, thinking of you and I firmly believe you will handle it all very well.Scott K. Johnsonhttps://www.blogger.com/profile/06601851114190791084noreply@blogger.com