tag:blogger.com,1999:blog-2536178837256094246.post9018124684701939389..comments2023-10-12T02:48:59.370-07:00Comments on The Nefariouspoo of Sarah (A Field Trip into Disability Advocacy): Grieving a Dying PancreasSarahhttp://www.blogger.com/profile/02841767505240383644noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-2536178837256094246.post-86422796586259177432007-06-25T00:10:00.000-07:002007-06-25T00:10:00.000-07:00(((Hugs)))(((Hugs)))Christinehttps://www.blogger.com/profile/13564731989568599206noreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-430167244105285362007-06-21T04:57:00.000-07:002007-06-21T04:57:00.000-07:00A little over a year ago, my son's school broke my...A little over a year ago, my son's school <A HREF="http://hazardouspastimes.blogspot.com/2006/06/and-i-cry.html" REL="nofollow">broke my heart</A> more than his diagnosis ever did; and I <A HREF="http://blog.360.yahoo.com/blog-BjdSY0whdKjd1zAV37oupwAljK2NJrW9AmL3O3VshLxgUH6MUurz?p=31" REL="nofollow">recently re-visited</A> that experience (and still cried).<BR/><BR/>See stories like these is one of the things that pisses me off about people's reactions to autism. And yet... When you're living it you just do what you've got to do.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-20307162962356493942007-06-20T05:24:00.000-07:002007-06-20T05:24:00.000-07:00You WILL do what you need to do and she will be OK...You WILL do what you need to do and she will be OK. <BR/><BR/>Take care. I understand your sorrow.Careyhttps://www.blogger.com/profile/03252423353276583308noreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-7547216313944873202007-06-19T13:17:00.000-07:002007-06-19T13:17:00.000-07:00It seems harder to slowly lose the function of the...It seems harder to slowly lose the function of the pancreas -- most people do not have all that time to worry -- and then you have to adjust all over again. It's like getting the news of the diagnosis twice, plus spending all that time "waiting for the hatchet to fall." You don't have to worry about the sugar free juice packs, though, that's the least of it. Minute Maid makes 2 gram juice packs, as well as juice in the dairy section, lemonaide, fruit punch and berry punch, same deal, 2 grams for 8 ounces. You probably know all the free food from your own childhood: sugar free jello with whipped cream if you want, dill pickles, mozzerella and pepperoni, half cup strawberries, sliced with splenda and whipped cream if you want a 5 gram treat, veggies and 0 carb <BR/>Ranch dip, hotdogs, no bun, hamburger on lettuce, 1 gram catsup, sunflower seeds, cheeses. If you can count carbs exactly, you can use multiple daily injections, with Lantus being the basal, and Novolog the bolus insulin. She actually could eat what she wanted on that regime. However, I have found best results with three meals, one snack, evenly spaced, no eating late at night.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-23216038974051660392007-06-18T23:57:00.000-07:002007-06-18T23:57:00.000-07:00Even brave-hearts take a vacation. I'm thinking of...Even brave-hearts take a vacation. I'm thinking of you & peanut & Sandis. If only . . . there are so many "if only's". I wish I could help. If I can do anything let me know.Amberthymehttps://www.blogger.com/profile/01941547661889457008noreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-60812453148416370422007-06-18T18:45:00.000-07:002007-06-18T18:45:00.000-07:00If you want any advice for the day care, feel free...If you want any advice for the day care, feel free to shoot me an email. O was on NPH and Regular while she was at daycare, so she was on a pretty strict diet plan. <BR/><BR/>It's ok to grieve. Every time O hits another diabetes "milestone," I die a little inside. You wonder how much the heart can take - things chip away and chip away until you almost wish you couldn't feel anything any more.Major Bedheadhttps://www.blogger.com/profile/17669161302510096751noreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-32725877196160142932007-06-18T17:02:00.000-07:002007-06-18T17:02:00.000-07:00Thinking of you guys Sarah.Have you ever talked wi...Thinking of you guys Sarah.<BR/><BR/>Have you ever talked with your mom about your diagnosis? How old were you, and how did she handle it?Scott K. Johnsonhttps://www.blogger.com/profile/06601851114190791084noreply@blogger.comtag:blogger.com,1999:blog-2536178837256094246.post-23884305410067710892007-06-18T16:35:00.000-07:002007-06-18T16:35:00.000-07:00Sarah, I am so very sorry. Tonight the pink candl...Sarah, I am so very sorry. Tonight the pink candle will be lit for you guys.Minnesota Nicehttps://www.blogger.com/profile/02170043587010711783noreply@blogger.com