Health care is a basic human right, not a privilege. For some reason, we’ve allowed ourselves as Americans to be fooled into accepting that one must be blessed with “means” to actuate appropriate health care. As a nation we have failed to realize that our health care system is a barometer of our society’s value for human life.


Monday, June 16, 2008

I Feel As Though an Explanation is Owed

Yes, things have been hectic. Yes, things have been crazy. These are not the reasons that I have been choosing not to blog.

Yes, choosing.

I have found that while I am no household name, in my community my name is more well-known as I participate in more activities that put my name front and center. This hinders my freedom for open speech.

I have found in my advocacy work that I am involved with organizations planning various events and programs. I may ponder these activities often, but I am not free to share what is not yet to be. When I am representing not only myself but potentially also other organizations, it is not prudent to share many things. While I need not conduct myself in secret, it is typically not ethical to discuss ideas that are merely in planning stages and may never come to be.

I have found that I cannot write about what is, and what may be. I have found that my speech is not free, not by any extension of law but rather by a mixture of events and circumstances that make sharing much harder.

This blog has served as an excellent place to feel out my children’s diagnoses. It will not be an appropriate place to feel out my advocacy ambitions. While I imagine with the help of other parents I will accomplish much, my venue now must be more professional and more closely honor other’s confidentiality needs.

I doubt I will be back, but then again, I may…