Health care is a basic human right, not a privilege. For some reason, we’ve allowed ourselves as Americans to be fooled into accepting that one must be blessed with “means” to actuate appropriate health care. As a nation we have failed to realize that our health care system is a barometer of our society’s value for human life.

-Me

Monday, June 16, 2008

I Feel As Though an Explanation is Owed

Yes, things have been hectic. Yes, things have been crazy. These are not the reasons that I have been choosing not to blog.

Yes, choosing.

I have found that while I am no household name, in my community my name is more well-known as I participate in more activities that put my name front and center. This hinders my freedom for open speech.

I have found in my advocacy work that I am involved with organizations planning various events and programs. I may ponder these activities often, but I am not free to share what is not yet to be. When I am representing not only myself but potentially also other organizations, it is not prudent to share many things. While I need not conduct myself in secret, it is typically not ethical to discuss ideas that are merely in planning stages and may never come to be.

I have found that I cannot write about what is, and what may be. I have found that my speech is not free, not by any extension of law but rather by a mixture of events and circumstances that make sharing much harder.

This blog has served as an excellent place to feel out my children’s diagnoses. It will not be an appropriate place to feel out my advocacy ambitions. While I imagine with the help of other parents I will accomplish much, my venue now must be more professional and more closely honor other’s confidentiality needs.

I doubt I will be back, but then again, I may…

5 comments:

Scott K. Johnson said...

I can certainly understand your decision.

I personally very much appreciate all that you have shared with us in the past, and look forward to hanging out with you and the fam sometime.

You helped me take a big step in my personal diabetes care in experimenting with symlin in a pump (which I'm still using and enjoying) - thank you very much for that generous gift.

Colleen said...

I've missed you and the reports of the kids' progress. I do understand though, but hope you'll keep us posted every now and then. And - isn't there a wedding soon??

Minnesota Nice said...

Oh dang, Sarah. I understand what you're saying.
But, couldn't you just check in every few weeks and update us on how everybody's doing, in a general sense?
Also, please don't deprive us of seeing pics of the wedding.

Laura G. said...

Sarah, thank you for keeping up this terrific blog for all this time. Some of your detailed posts from a while back really helped me get better at surviving biking and swimming, and managing on Symlin! I appreciate you sharing your knowledge. Best of luck with your children's health and with all your advocacy work too.

The Patients Voice said...

Hi

We have just launched a test version of a new site which you might find of interest

Please go to

http://www.icarecafe.com/?page_id=4&cat_id=2&thread_id=1&post_type=5&group_id=2

Thanks

Belinda